Our little girl Esther Frances Holtrop was diagnosed with CDH when I was 21 weeks along. I gave birth to Esther at UW medicine April 12th, 2012. Esther's fight for her life began the moment she born. We had many moments we almost lost her. She was transported to Children's Hospital in Seattle and lived for 20 days, passing May 2, 2012. We are thankful for the story that God wrote in our lives and only hope that he gets all the glory in this.
Rhonda and Jason
Our Wedding Day
Wednesday, April 18, 2012
Esther is as stable as she has been today. Currently waiting for her brain ultrasound results. Plans remain the same, but will advance if brain bleed remains stable (increase of blood thinners). Also planning on changing the "circuit" for the ECMO again today. As blood flows through the system it adheres to the tubing and mechanisms eventually creating clots necessitating a circuit change.
Still longing to glorify God in this time. Knowing He meets our needs and we must trust in Him. A few passages we browsed today lead me to this one:
But I will sing of your strength, in the morning I will sing of your love; for you are my fortress, my refuge in times of trouble.