Rhonda and Jason

Rhonda and Jason
Our Wedding Day

Sunday, April 29, 2012

2 steps forward, 1 step back

Esther has been pretty active for the past 18 hours or so.  Fighting to see a little of the world around her.  Wandering eyes, dancing hands.  She had an excellent chunk of sleep yesterday, her chest rising and falling.  Then she woke up and was having nothing of the medications to sedate her.
So, overnight she didn't settle much.  This morning her lungs are a little more collapsed again.  The ECMO circuit has already gotten pretty clogged with fibrin and clots.  The doctors want to keep after getting her lungs open more and moving towards stopping ECMO.  For that, Esther needs to show more sustained improvement in her lungs.  On a good note, her swelling has come down tremendously and her abdomen is a little less tight.  However, she did have a little blood in her stomach tube last night.
So, a little good (we have another day to be with our beautiful daughter) and some not so good.  It is what we have been told to expect and have not had to deal with for a few days.
We continue to trust in the Lord that His plans for us are good.  We lift up all you prayer warriors out there to receive sustaining strength and peace from the Holy Spirit to continue the battle for God's glory.  To Him be all the glory forever, amen.
forget the morphine, let's play!


  1. She is just precious! Your life is a roller coaster right now. It feels like 2 steps forward, 1 step (or sometimes 2,3,4 steps) back. It's a long and draining journey but don't be disheartened. Esther has Jesus in her corner and she is a warrior. I'm so happy you are getting a chance to interact with her a little bit.

    Jacob's Mommy

    1. Katy- thank you so much for your constant encouragement. It is always perfect and exactly what we need to hear. We love your walk with the Lord and your story that shares hope, faith and life to us. WE are praying for you also with little Jacob. Take care

  2. She's just showing her fighting spirit... which is what is going to pull her through! Come on, Esther! Cooperate now and focus on those lungs, sweet girl. Continuing to lift you all up in prayer. Peace be yours.

  3. Praying without ceasing for your Beautiful Esther..."I am the Lord that heals you! - Exodus 15:26. My heart goes out to you for some sweet rest and Papa's sweet water. Upper Room Sister in Christ

  4. What a beautiful fighter you both have! I have been folowing your journey and as a mother of a 14 month old son, my heart aces for you. Stay strong and give your sweet girl all the love you have to give so she will always know how much you love her. Jesus gives us one day at a time to cherrish, and i know you both are. Prayers for healing strength and patience... I know it's not easy. With love, Jaisha Hudson Richbaw

  5. Oh my! I love to see her beautiful little eyes wide open with wonder. I cannot wait for the day when I log on to your blog to find her precious little face free of all of the tubes. I continue to pray for little Esther. I love her though I've never met her. I think about you all often, and continue to pray for a speedy recovery!