As this continues doctors, nurses, ECMO tech's and ourselves are nervous for the "big one". As one of the doctors stated earlier this week "we could go 10-12 days without any significant bleed and then day13-18 have a large bleed and all our patience and waiting is for nothing".
So when Rhonda told me today we needed to meet with the doctors to discuss "what next", fear slipped in just a little. In all honesty though, God has covered me with His peace today. We weren't supposed to have today. We weren't even supposed to have this last week! Today Esther is the adorable, absorbing all my love daughter God has trusted Rhonda and I with.
Like I said last night, we never know when our time is. Let alone our children's. I am so thankful God has given me today, right now. I cherish it. In a way, we have it better. I mean, if you new you were going to die, what would you change, do, plan, hope for?
I just wanted to boast about God's presence in our struggle. Verses get thrown around with immense meaning and power that you can almost hear too often to be impacted, but He truly never leaves or forsakes you .
I pray that anyone who reads this, shares it, or discusses it will take a moment to "Be still and know that I am God". In other words, simply stop and wait upon the Lord. Seek His presence.
The response from everyone really has uplifted Rhonda and I, as our purpose for the blog and sharing our Esther and our trial was to hopefully Glorify God and magnify His name. You all (y'all for our southeastern brethren) have done that yourselves. Keep the prayers coming. There is no "right" way to pray. God wants a personal relationship with us, so talk with him as you would your best friend. He will listen in the same way.
|All the medications that are being delivered to Esther to keep her alive|
|Pappa loves singing songs and praying with his little girl.|
|Some of the machines that are keep Esther alive|