Rhonda and Jason

Rhonda and Jason
Our Wedding Day

Sunday, April 22, 2012

He is in control

Rhonda posted a quick update to facebook earlier about the brain ultrasound coming back with slight increase.  That said, the doctors from each team had roughly the same response.  That in terms of her overall bleed, it has grown a fair amount, but in terms of the day to day the growth today is very minimal and could almost be classified as "no change" or stable.
As this continues doctors, nurses, ECMO tech's and ourselves are nervous for the "big one".  As one of the doctors stated earlier this week "we could go 10-12 days without any significant bleed and then day13-18 have a large bleed and all our patience and waiting is for nothing".
So when Rhonda told me today we needed to meet with the doctors to discuss "what next", fear slipped in just a little.  In all honesty though, God has covered me with His peace today.  We weren't supposed to have today.  We weren't even supposed to have this last week!  Today Esther is the adorable, absorbing all my love daughter God has trusted Rhonda and I with.
Like I said last night, we never know when our time is.  Let alone our children's.  I am so thankful God has given me today, right now.  I cherish it.  In a way, we have it better.  I mean, if you new you were going to die, what would you change, do, plan, hope for?
I just wanted to boast about God's presence in our struggle.  Verses get thrown around with immense meaning and power that you can almost hear too often to be impacted, but He truly never leaves or forsakes you .
I pray that anyone who reads this, shares it, or discusses it will take a moment to "Be still and know that I am God".  In other words, simply stop and wait upon the Lord.  Seek His presence.

 The response from everyone really has uplifted Rhonda and I, as our purpose for the blog and sharing our Esther and our trial was to hopefully Glorify God and magnify His name.  You all (y'all for our southeastern brethren) have done that yourselves.  Keep the prayers coming.  There is no "right" way to pray.  God wants a personal relationship with us, so talk with him as you would your best friend.  He will listen in the same way.
All the medications that are being delivered to Esther to keep her alive

Pappa loves singing songs and praying with his little girl.
Some of the machines that are keep Esther alive


  1. Praying for sweet baby Esther and that her brain bleed will resolve completely. Praying for continued peace for you and Rhonda.

  2. Still praying for you guys and praying for wisdom for Esther's team. I love that you are learning to enjoy each day. That's the best thing you can do is just take it one day at a time and trust God.

  3. Prayers are being said for you all. Take care.

  4. Continuing to pray that God will heal precious Esther. I pray that the bleed will resolve. God is using Esther as a testimony. Your family is in my thoughts and prayers. God is good!!

    Sharon Connell

  5. Prayers and love for Gods guidance for all of you. Thank you Lord Jesus for your daughter Esther.

  6. It is truly amazing how strong these little warriors are. Hunter continues to teach me lessons each day. A couple of the more important ones are to value and respect life and living life. His birth and strength to live life have truly humbled me. Esther is a strong warrior and she is teaching you both lessons already. My love, prayers and positive energy is being sent your way.
    Christina Stembler
    Mom to Hunter LCDH Survivor
    Wa. State CHERUBS Rep

  7. You all have been in my prayers since Rachel & Jeremy C. posted your story on FB. I have shared this with a devotional group "family" (at the Upper Room site) and you are in their prayers as well. You have received such a gift in Esther and she the gift of her family. In turn you all have given all of us a gift as well. Love and prayers for you all.

  8. Beloved Papa, Jesus and Holy Spirit...You are Forever Faithful - You will keep all of your Promises to Precious Esther and her family. She is bring Glory to Your Holy Name!!! Her parents testimonies of Love for You,Papa, and Precious Esther Unite us in Love as we Pray- Faith, Hope and Love. The Greatest of these is Love. Covered by His Amazing Grace - Amazing Love! -Your UpperRoom sister in Christ