Whenever we experience something difficult in our personal life, we are tempted to blame God. But we are the ones in the wrong, not God. Blaming God is evidence that we are refusing to let go of some disobedience somewhere in our lives. But as soon as we let go, everything becomes as clear as daylight to us. As long as we try to serve two masters, ourselves and God, there will be difficulties combined with doubt and confusion. Our attitude must be one of complete reliance on God. Once we get to that point, there is nothing easier than living the life of a saint. We encounter difficulties when we try to usurp the authority of the Holy Spirit for our own purposes.
God’s mark of approval, whenever you obey Him, is peace. He sends an immeasurable, deep peace; not a natural peace, “as the world gives,” but the peace of Jesus. Whenever peace does not come, wait until it does, or seek to find out why it is not coming. If you are acting on your own impulse, or out of a sense of the heroic, to be seen by others, the peace of Jesus will not exhibit itself. This shows no unity with God or confidence in Him. The spirit of simplicity, clarity, and unity is born through the Holy Spirit, not through your decisions. God counters our self-willed decisions with an appeal for simplicity and unity.
My questions arise whenever I cease to obey. When I do obey God, problems come, not between me and God, but as a means to keep my mind examining with amazement the revealed truth of God. But any problem that comes between God and myself is the result of disobedience. Any problem that comes while I obey God (and there will be many), increases my overjoyed delight, because I know that my Father knows and cares, and I can watch and anticipate how He will unravel my problems.

This is exactly what Jason and I feel.  Peace.  Its unexplainable, being that we are in the circumstances that we are in.  But we are going to lean in on the hope and trust that God knows what he is doing and it is out of our hands.

I was sad to find out our daughter has a left foot that is slightly a club foot.  But was relieved that at least it wasn't something wrong with her heart.  I know that a club foot could be taken care of surgically and no one would ever know she even had it.  We also found out that the success rate at Children's hospital for children with CDH is 80-85% survival rate.  I was reading information prior to coming to our appointment and the Internet was saying a 50% chance of survival for our daughter.  This also gives me more peace.  As Jason already said, we wont really know how our daughter will be till she is born.  So we will just wait and pray and find peace in Gods sovereign plan.  We have found so much strength and encouragement in our friends that we have told so far.  Here is one message that someone had left me:
If there's ONE thing I don't quite grasp with God it is His SOVEREIGNTY. The fact that he goes before us. If God said to you today, "Rhonda, I need you to make a huge sacrifice personally, but the lives you will impact through this personal sacrifice of yours will be in the thousands of people for Christ. Are you willing?" I know without a shadow of a doubt what your answer would be. I also know that you are growing a piece of heaven inside you and for however long you get that piece of heaven-a lifetime or a short time, God is GOING to change lives through you. You and Jason are part of his SOVEREIGN plan. The miracles that you will see will astound you. You WILL see them because you my dear sister will be calling out to our Savior and He WILL answer. I love you lots.

This is completely true.   

I also received an amniocentesis at the end of our visit just to see if there was anything else that might be wrong with our little girl.  So far they don't think she has down syndrome but we thought we would check to see if there is anything else wrong with her so that the team of surgeons is prepared when she is born.  

We felt so encouraged by the staff at UW medicine and know that we are in the best hands ever.  

After that we went to Children's Hospital to see one of my dear friends who I worked with in detention.  Her baby was born 9 weeks ago with complications also.  I find it weird that we both worked on the same shift and both have babies with genetic abnormalities and a genetic fluke out of nowhere.  Jason and I both left the hospital feeling more at peace realizing what we were going to have to go through.  We feel like we learned the ins and outs of what our life will be like as we stay at Children's hospital and the NICU.  We know that we have a long road ahead and will get through it with our friends and families support.